Print-Friendly Version


Crystal Barker, Registered Nurse

I am a registered nurse at the Veterans Affairs Greater Los Angeles Healthcare System, Los Angeles, California. I have known Dr. Darvish for more than 10 years now as a colleague.

"I am inspired each day by his presence" ~ Crystal

SCIENCE HERO:
BABAK DARVISH, MD

by Crystal from Los Angeles

Babak (Bobby) Darvish and his lovely wife, Sandra (hibm.org)

I have known Dr. Darvish for approximately ten years as a colleague now. He is one of the most amazing doctors that I have ever met, and one of the most amazing human beings I have ever met. I love him like a brother and there are so many at our facility who love him so... I don't just mean respect, but LOVE him and this includes his patients and his coworkers. He is a brilliant, kind, gentle, compassionate man who brings a gift to this world. Let me tell you his story. Dr. Darvish is about 38 years old. When I first met him, he was able-bodied and walked with a slight limp. Over the years, I have watched a disease progression that has taken him to his current state of being confined to a wheelchair. His muscles have weakened over the years and I've watched him go from a limp to the use of a cane to the use of crutches, and then to the use of an electric wheelchair. The amazing thing is he is still fully contributing to his work department, working not only his scheduled hours, but often staying hours later in his office. We laugh and joke because he is often in danger of missing his wheelchair van ride home in the evenings and we have to chase him out of his office. He has the greatest outlook on life. He's optimistic, happy, encouraging, and brings out the best in others. He is a vital team member, bringing to the table his brilliance (and I mean he is really brilliant), his wisdom, his experience as a disabled person, and his attitude of hope and belief that everyone has something to offer.

Babak and Daniel Darvish (http://www.jewishjournal.com/
images/photos/lab.11.22.02.jpg)
Dr Darvish can make the most difficult patients turn around in their attitudes and thoughts as he role models hard work and the essence of quality of life. His arms are weak; he can hardly raise them to shake someone's hand or open doorknobs etc., but despite all of this, people around him do not see him as disabled, but as a leader. He inherited a very rare genetic disease that has only been really identified in the past 10-15 years. He and his brother had the ill fate of both getting this condition called HIBM (Hereditary Inclusion Body Myopathy)--it wreaks havoc on the muscles and over time they become weak and wasted and leave persons disabled. When he and his brother first had symptoms (his brother is a doctor too), they and their doctors did not know what they had--they could not be diagnosed. So, being the whiz kids that they were, they set out to find out. They traveled to other countries to talk with doctors and people and helped diagnose themselves. Because the condition was so poorly known, even amongst neurologists and psychiatrists, he and his brother and his family founded a nonprofit organization in order to help others, with the ultimate goal of trying to find the cure. They set up an organization called ARM (Advancement of Research for Myopathies) www.hibm.org. Over the years, they have found research sites to work with and have begun research to help understand this condition, with the hopes of eventually finding a cure.

Their organization is now going on ten years of service and they will have their first human clinical trial this year (2008), planned for the fall. On top of his full-time job at the VA, Dr. Darvish works endless hours at other facilities on this research. The first person to undergo a trial of gene therapy will be a health care professional with HIBM. Dr. Darvish's organization has raised more than 1 million dollars for research within the community. He is an unsung hero for all that he does each and every day to get up, get dressed, get in his wheelchair, ride the wheelchair van to work and work more than 40 hours per week with us and then go to other facilities after work and on weekends.

Daniel Darvish and his loving wife, Sheila (hibm.org)
When he and his brother began exhibiting symptoms of the disease, they were inspired to help others, so they worked to create a research facility where they now reach out to persons all over the world. Please visit their website at www.hibm.org and see the information about this disease process.

Dr. Babak Darvish inspires us all on the rehab unit on a daily basis. He has a very supportive wife who adores him and now they have a new son. I guarantee you that, if you were to talk to this man by phone, email, or in person, he would simply amaze you and make you a believer that there are good people in the world. Dr. Darvish is such a wonderful person and we would like nothing more than to give him a great surprise and energy booster by saying THANK YOU for all he does at our facility and for all that he is doing in the community. Dr. Babak Darvish is our hero!


Written by Crystal from Los Angeles


RELATED LINKS

Advancement of research for Myopathies (ARM) Founded by HIBM patients in 2000, ARM's mission is to support and inform patients and their families, to raise funds for research, to encourage researchers to study this rare disorder and to ultimately find a cure for Hereditary Inclusion Body Myopathy.

Babak Darvish, MD "Muscular Disorder Won't Stop Siblings" by Nancy Sokoler Steiner from "The Jewish Journal" (November 21, 2002)

Babak and Daniel Darvish American Chronicle

VA Greater Los Angeles Healthcare System is the largest, most complex healthcare system within the Department of Veterans Affairs.


 


More Featured Lifesaver Heroes

A Powerful Noise promotes the global empowerment of womenA Stranger helped a young girl who was lost in the city.Alan Beavan will be remembered for his bravery on Sept. 11, 2001.Albert Schweitzer had a 'reverence for life.'
Andrea Coleman has used her passion for motorcycling to transform healthcare delivery in rural parts of Africa. Babak Darvish, MD inspires his patients and coworkers with his upbeat attitude and determination.Balto led his dog team on the lifesaving 1925 serum run to Rome, Alaska Ben Carson 
is the chief of neurosurgery
at Johns Hopkins University Hospital.
Bernard Fantus created the world's first blood bank.Bernard Kouchner 
is the co-founder
of Doctors
without Borders
Bill Wilson changed countless lives and livelihoods by founding Alcoholics Anonymous.Chiune and Yukiko Sugihara believed in freedom and saved many Jews during WWII.
Claire Lalanne founded the Center for Nutritional Recovery.Colonel Jack H. Jacobs His extraordinary heroism saved the lives of 14 people.Dan Mazur sacrificed climbing to the summit of Mt. Everest to save another climber.Dennis Smith Dennis Smith is an author and retired firefighter
Desmond T. Doss became a medic during WWII and saved many lives.Doctor Steven Kopits was a compassionate physician who lives on in the hearts of his patients.Don Cheadle
and Darfur Now
 deliver a call to action to stop the genocide in the Sudan.
Dr. David Applebaum was a selfless emergency room doctor in Jerusalem
Dr. Ginger Holt saved Drew's leg when he was in the hospital.Dr. J. Larry Brown directs the national Center on Hunger and Poverty.Dr. Mark Jacobson 
works with AIDS
patients in Tanzania.
Dr. Michael DeBakey is the father of modern open-heart surgery.
Dr. Paul Brand was a compassionate surgeon who pioneered work in leprosy.Dr. Van Halbach is a hero to the Ghenender family for saving Ingrid's life.Eddie Aikau loved the sea and often risked his life to save othersEdith Cavell was a nurse who risked her own safety to help others during WWI
Elizabeth Blackwell became the first female doctor and opened the first medical school for women.Evelyn H. Lauder founded the Breast Cancer Research FoundationFauzia Minallah is the founder of Funkor Childart Centre and an ARTIVIST.Firefighters in
New York City
are the heroes
of the day.
Fireworkers from Chernobyl bravely gave their lives to protect the safety of others during the Chernobyl nuclear disaster.Florence Ngobeni 
urges African
leaders to work for
AIDS prevention.
Florence Nightingale 
revolutionized
nursing.
Frances Moore Lappe works to eliminate the injustices that cause hunger.
Fred Hollows was an Australian ophthalmologist committed to providing eye care to Aboriginal and poor people. Fridtjof Nansen  was a daring explorer, a freedom fighter, and a selfless humanitarian. George Latham saved a girl from a burning car and is also a hero to his daughter.Giorgio Perlasca saved the lives of thousands of Jews during WWII
Harriet Tubman organized the Underground Railroad and helped lead slaves to freedom.Helene Gayle is one of the leading authorities on AIDS research.Hermine Santrouschitz
(Miep Gies)
 kept Anne Frank and her family safely hidden from the Nazis.
In My Name challenges all of us to take a stand to end poverty.
Irena Sendler helped Jewish children escape the Warsaw ghetto during the Holocaust.Ivan Beltrami joined the resistance during WWII and saved many Jews.Jody Williams is a human rights activist and Nobel Peace Prize winner who began a campaign to rid the world of landmines.John Polivchuk 
was a firefighter who inspired others with his bravery, selflessness and optimism.
Jon Rose is a surfer dedicated to bringing clean drinking water to the world.Judith Blair donated one of her kidneys to a man in desperate need.Juvenile Diabetes Research Foundation 
is a hero to Rachel who was recently diagnosed with Juvenile Diabetes.
Kurt Klein brought, among others, his future wife, Gerda, and Oskar Schindler, to safety.
Lillie Hitchcock-Coit was a turn of the century firefighting hero.Liviu Librescu 
was a Virginia Tech teacher who sacrificed his life to save his students.
Maximilian Kolbe was a Catholic Saint known for his great humanity during WWII.Michael Kelley beat all the odds as a paratrooper and police officer.
Mike Kelly risked his career as a surgeon to save Bob's life.Mikey Ray Frasier is a lifesaver three times over.Molly Pitcher was a Revolutionary War heroine who bravely carried water to soldiers on the battlefield.Moses Zulu established Children's Town in Zambia to teach AIDS orphans life skills.
mpower harnesses the power of music to change youth attitudes about mental health.Nathaniel Dunigan creates hope for Ugandan orphans with HIV/AIDS.Nick Anderson and Ana Slavin challenge young people to get involved to help end the humanitarian crisis in Darfur.Norman Borlaug saved billions of lives with his agricultural discoveries.
Olara Otunnu 
is devoted to saving the lives and futures of children in war-torn countries.
Olivia Harrison founded an organization to help abandoned children in Romania.Oumoul Khary Sow founded the Caravan of Hope which travels to remote areas in Senegal to help prevent malaria.Pat Pedraja
and Driving for Donors
 is helping young and old cancer patients receive the life saving bone marrow treatments.
Paul Farmer  has dedicated his life to treating people in the poorest nations in the worldPaul Rusesabagina saved the lives of more than 1200 Rwandans who took refuge in his hotel.Princess Eliza Ella has been inspired by Eliza the hero in The Wild Swans by Hans Christian AndersonRaoul Wallenberg saved thousands of lives during the Holocaust.
RAWA promotes women's rights through non-violent action.Robert E. Kimura, M.D. is a hero to his niece in and out of the operating room.Rudolph Giuliani , New York Mayor, was a compassionate leader following the World Trade Center attack.Ryan Hreljac helps build wells for clean water in Africa.
Sompop Jantraka helps poor children in Thailand to avoid child prostitution and obtain an education.To Write Love On Her Arms was founded to help people suffering from depression and substance abuse.Tommie Hamaluba is a teacher in Botswana, Africa working to eradicate malaria.Trisomy 18 Foundation raises awareness and supports research for cures for this genetic disorder.
   
Vilmos Farkas sacrificed his personal safety to save the lives of a couple of strangers.   
More Featured Science Heroes

Abner Peeler is credited with the invention of the first airbrush.Ada Lovelace  was a ninteenth century woman who influenced the computer programming of todayAlan Turing laid the theoretical groundwork for the first computer.Albert Einstein believed in the power of imagination.
Alexander Borodin was an accomplished chemist, composer and staunch advocate of women's rights.Alexander Graham Bell 
was the inventor of the telephone.
Ameen Abdulrasool is a young inventor who developed a portable navigation system for the blind.Amy Charkowski works
on the front lines of protecting Earth's
food supply.
Andrea Mia Ghez is an astrophysicist best known for her discoveries about the black hole at the center of our galaxy.Ariel Ruiz i Altaba
Scientist - Photographer
 combines art and science to research how cells are generated and formed.
Audrey Penn:
Just Do It
 is a medical doctor who has devoted herself to studying diseases that affect muscle control.
Augusta Ada Byron developed the world's first computer program while struggling with her own personal hardships.
Babak Darvish, MD inspires his patients and coworkers with his upbeat attitude and determination.Barbara McClintock was one of the first women geneticists, and a Nobel laureate. Ben Carson 
is the chief of neurosurgery
at Johns Hopkins University Hospital.
Benjamin Franklin was an inventor, diplomat, writer, and a huge influence on American history.
Benjamin Franklin was an inventor, civic leader and founding father of the U.S.Bernard Fantus created the world's first blood bank.Bernardo Houssay was an Argentinean physiologist and Nobel Prize winner.Beth Rickard
Environmentalist
 is an advocate of solar as the energy of the future.
Bill Fenical
"Neptune's Medicine Chest"
 is a pioneer in the hunt for medicines from the ocean to treat cancer and other diseases.
Bonnie Dunbar 
helped start a scholars program to inspire students to pursue careers in aerospace and engineering.
Charles Darwin is the father of modern biology.Chiaki Mukai is the first female Japanese astronaut.
Christiane Nusslein-Volhard is a Nobel Prize winner and pioneer genetic researcher.Claudia Gerwin:
Keeping the Neurons Firing
 researches how nerve cells relay messages to each other.
Clifford V. Johnson is a string theorist who studies the makeup of the smallest particles of the universe.Connie Samaras has created media archives for deep space voyages.
Courtney Schumacher is an atmospheric scientist and educator committed to mentoring young women interested in science.Cristina Diaz:
Biologist
 studies intertidal and tropical sponges.
Dame Cicely Saunders founded the modern hospice to provide compassionate, holistic care to the dying.DAREnet provides open access to Dutch academic research information and findings.
Darlene Cavalier founded ScienceCheerleader.com to promote science literacy.Darlene Ketten studies stranded whales and dolphins.Dean Kamen makes science and technology exciting for young people,Debbye Turner became Miss America and pursued her dream to become a veterinarian.
Dilfuza Egamberdiyeva cares for the Earth's soil, researching ways to produce microbes to control plant diseases.Dr Deepak Acharya is a scientist devoted to protecting India's endangered Patalkot Forest.Dr. Alexander Langmuir Langmuir's work in epidemiology has saved millions of lives.Dr. Barbara Ross Lee became the first African American woman dean of a US medical school.
Dr. Caldicott  has
been a lifelong
anti-nuclear activist.
Dr. Carolyn Mazure founded the Yale Women's Health Program and is a forceful figure in the women's health movement.Dr. Edward Holland
Ophthalmologist
 transplants corneal stem cells to help give people their sight back.
Dr. Edward Jenner discovered the vaccine.
Dr. Elizabeth Kalko
and the Jason Project
 studies bats in the Panamanian rainforest.
Dr. Elvia Niebla
Soil Scientist
 is dedicated to soil conservation.
Dr. Farouk El-Baz 
is an Egyptian space scientist and geologist.
Dr. France Cordova 
is a renowned
astrophysicist who
has broken gender
and cultural barriers.
Dr. Gloria WilderBrathwaite was inspired to provide health care to the poor in the innner city.Dr. Govindappa Venkataswamy 
cares for the eyes
of millions of
people in India.
Dr. Ines Cifuentes
Seismologist
 works to improve science programs for students in Washington, DC.
Dr. Karen Plaut has been a pioneer in animal science research.
Dr. Kay Jamison is both an expert on, and a sufferer of, Bipolar Disorder.Dr. Kristi Curry-Rogers is an accomplished paleontologist who travels the globe in search of dinosaur digs.Dr. Madan Kataria has started a revolution of joy and laughter that is spreading around the world.Dr. Michael DeBakey is the father of modern open-heart surgery.
Dr. Patch Adams 
gives the practice
of medicine a
humorous twist.
Dr. Richard Murphy
Marine Biologist
 educates others about the sea and ways to protect the oceans for the future.
Dr. Robert Ballard
and the JASON project
 bring scientific exploration to children around the world.
Dr. Rosalie Bertell
Anti-Nuclear Nun
 is a renowned scientist, eco-feminist and peace activist.
Dr. Sara W. Lazar
Neuroscientist - Meditator
 researches the effects of meditation on the brain.
Dr. Sue Savage-Rumbaugh is a scientist dedicated to the study and conservation of bonobos.Dr. Susan Love is committed to women's health issues.Dr. Zeda Rosenberg is working to protect women from HIV/AIDS.
Elizabeth Blackwell became the first female doctor and opened the first medical school for women.Enrico Fermi was one of the 20th century's greatest physicists.Envirofit retrofits engines to reduce pollution and enhance energy efficiency in developing countries.Erich Jarvis observes song birds and uses his training with molecular biology to learn about brain behavior.
F. Sherwood Rowland discovered the 'greenhouse effect.'Fati Kirakoya is a researcher committed to finding solutions to end HIV/AIDS.Frederick Banting was the co-discoverer of Insulin.Friends of the Sea Lion rescue, treat, and release these mammals back into the ocean.
Gail Kaaialii:
Biologist
 investigates the origins of life and helps others value all life forms.
Galileo Galilei was the first to use a telescope to observe the stars and planets.George Washington Carver is famous for experimenting with plants.Gertrude B. Elion developed
the AIDS drug, AZT.
Gina Gallant is
an inventor whose
passion is
protecting the
environment.
Grace Murray Hopper was a computer visionary and naval officer.Guglielmo Marconi was an Italian inventor who won a Nobel Prize in Physics for wireless telegraphy.Guion S. Bluford, Jr. 
became the first African-American in space.
Hazel Barton combines her passion for caving with researching microbes.Hib Vaccine Team created an affordable, synthetic vaccine against the bacteria that can cause meningitis and pneumonia.Howard Florey shared the Nobel Prize for Medicine for extracting penicillin.Irene Ayako Uchida helped find the link between radiation and birth defects.
Irene Curie was the second woman in history to win the Nobel Prize in science; the first woman was her mother, Marie.Jack St. Clair Kilby invented
the microchip.
James Burke 
developed a model of discovery called the Knowledge Web to connect information across space and time.
Jane Mt. Pleasant is an agricultural scientist who looks to the past to meet today's farming needs.
Jonas Salk discovered the polio vaccine.Kathy Sullivan was the first American woman to walk in space.Leon Lederman devotes much of his time and energy to improving science education in America.Leonard Adleman improves
lives with his work
in DNA technology.
Leonardo da Vinci was an artist and a scientist ever curious of the world around him.Leslie Thompson is a scientist devoted to finding a cure for Huntington's Disease.Louis Pasteur 's discoveries advanced the practice of medicine.Luz Maria Rodriguez-Fernandez conducts cancer research to help understand the disease process.
Madame Curie received the Nobel Prize for her discovery of Radium.Mae Jemison 
dreamed of going to space since childhood.
Magdalena Hurtado is an anthropologist who studies the Ache people of Paraguay.Margaret Mead 
was a renowned anthropologist who thought in terms of 'the interconnection of all aspects of human life.'
Marie Curie discovered radioactivity as an atomic property, opening the door to 20th century science.Martha Mecartney is a scientist, engineer and professor committed to helping young women interested in the field of science.Meenakshi Wadhwa studies meteorites and the processes involved in their formation.Merieme Chadid is an astronomer from Morocco who did research at the South Pole.
Mohammed Bah Abba invented a refrigeration device that is not dependent on electricity.Neil A. Armstrong 
was the first man to walk on the moon.
Nikola Tesla was
the father of
many modern inventions.
Norman Borlaug saved billions of lives with his agricultural discoveries.
Orville and Wilbur Wright were brothers determined to build a better flying machine.Patrick Nagatani uses photography and colored lights to promote good health.Paul Farmer  has dedicated his life to treating people in the poorest nations in the worldPaul Munsen
Solar Oven Man
 manufactures sun ovens, which harness the sun's rays to provide an environmentally safe source of energy.
Paul Sipiera led an expedition into Antarctica to find meteorites for NASA.Percy Julian was a groundbreaking African American chemist, inventor, and trailblazer.Philo T. Farnsworth was the inventor of the television.Ramani Sankaranarayanan
and Geeta Vaidyanathan
 
founded CTxGrEn to show villagers how to turn native materials into fuel for electricity.
Ray Kurzweil is an inventor who uses technology to restore health.Reef Ball Foundation restores damaged coral reef systems around the world.Richard Feynman shared the Nobel Prize in Physics for work in the field of quantum electrodynamics. Robert Koch was an important medical researcher of the 19th century.
Rokhaya Gueye treats malaria and
raises awareness about women's health issues in Senegal.
Saeed Awan  
developed a new carpet loom that reduces child labor in Pakistan.
Sandra Begay-Campbell is a Native American engineer who brings solar-powered energy to the Navajo reservation.Shannon Hackett studies the genetic diversity and evolution in tropical birds.
Sir Alexander Fleming saved millions of lives with his discovery of penicillin.Srinivasa Ramanujan made groundbreaking contributions to mathematics.Stephanie Jenouvrier is a population ecologist researching the effects of climate change on emperor penguins.Stephen Hawking is a renowned theoretical physicist who writes about 'black holes'.
Tania Ruiz is an astrophysicist committed to science education and helping women reach their goals.Thais Corral  gives women a voice in their communities through access to communication technology.Therese Koutnik is an inspiration to her sister and a role model for girls who would like to become engineers.Thomas Alva Edison holds the record for number of patents filed.
Thomas Alva Edison 
is considered one of the world's greatest inventors.
Tim Berners-Lee 
invented the World Wide Web.
Tom Chau
Biomedical Engineer
 uses science and technology to maximize opportunities for people with disabilities.
Tom Dibblee is a legendary geologic mapper.
Usha Varanasi is the first woman to lead a Fisheries Science Center. Vint Cerf , Internet pioneer, passionately believes that all people should benefit from the information revolution.Vladimir Kosma Zworykin is called
'The Father of Television'.
Wes Jackson was a professor who returned to the land to advance sustainable agriculture practices.
 
Wilson Bentley was the first person to photograph a single snowflake.XIV Argonauts broadcasted their explorations of the Channel Islands.Zohra Ben Lakhdar is a physicist from Africa who does research on atomic spectroscopy. 

 

Last changed on:9/12/2008 12:45:37 PM